As excitement is brimming about the RTÉ Toy Show, we are delighted to launch ‘On With Life; Supports for Parents/Carers of Children with an Acquired Brain Injury
Support for parents/carers of a child with an Acquired Brain Injury (ABI) is currently limited in Ireland, and we are grateful to RTÉ Toy Show Appeal, The Community Foundation for Ireland, and the public for the funding that has helped to make this project happen! The project will establish a national support network aiming to improve the wellbeing of children and their families with an ABI through parental and carer peer-support with relevant and timely educational and information resources.
A brain injury is sudden, disruptive, life-changing, and terrifying for both a child and their parent. Every brain injury is unique and different with most leading to physical, cognitive, sensory, or intellectual challenges. Brain Injury is a specialised area and the skills required to support children may not be available in non-specialist disability service providers. The project can help support this service gap. It further completes the Acquired Brain Injury Ireland support programme called On With Life that until now has supported carers of adults with an ABI only. We have learnt through our experience with carers of adults and by staying engaged with evidence based research that peer group support with relevant and timely information and education can improve the wellbeing of the whole family, enabling improved outcomes for the child with an Acquired Brain Injury. It is anticipated that 50 children and young people aged 5-18 with acquired brain injuries will benefit from this project.